Category Archives: COVID-19

COVID-19

Understanding Trends in Care Disrupted by the Pandemic

I’ve been following the continuing impact of gaps or delays in patient care due to the pandemic, so I was interested to see research on this topic (paywall). The study is an early look at the demographics of those affected by involuntary delays in care — people who had to delay, reschedule or cancel medical […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19

Engaged Patients Playing Catch-Up with Delayed Care

Editor’s note: The article below, first published by Kaiser Health News, reports on the effect of delays in medical care caused by the pandemic during the past year. That effect garnered immediate concern from many quarters last spring. I reported on it here in late May 2020, and, in hindsight, am taken aback to see how I failed […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19

‘Cruel’ Digital Race For Vaccines Leaves Many Seniors Behind

Editor’s note: The vaccine rollout in the United States is a vivid example of the uphill battle patients and their families often face dealing with the health care system. The stories vary, but in many places, including my home state of Massachusetts, the older age group that became eligible for COVID-19 vaccination after healthcare workers […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19

Going Door to Door in Little Havana to Build Trust in Testing, Vaccination

Little Havana is a neighborhood in Miami that, until the pandemic, was known for its active street life along Calle Ocho, including live music venues, ventanitas serving Cuban coffee and a historic park where men gather to play dominoes. But during the pandemic, a group called Healthy Little Havana is zeroing in on this area with […]

COVID-19, Uncategorized

Advocating for Those Hit Hardest by the Pandemic: Nursing Home Residents

Penny Shaw is a writer and advocate working on behalf of individuals with disabilities and nursing home residents. A university faculty member and administrator with a Ph.D. in French literature, Shaw developed Guillain-Barre Syndrome, a rare neuromuscular condition, in 2001. In 2002 she moved to a nursing home in Braintree that specializes in neurorehabilitation, where […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19

Dread Risk — A New Challenge for Patient Engagement

In addition to death, disability and disruption of virtually every aspect of normal daily life, the pandemic is causing millions of people to miss or postpone medical care for non-COVID conditions. The full effect of missed and delayed care may never be accurately measured, but there is a growing sense that COVID-19 is causing extensive collateral […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19

Virtual Town Hall – What Dialysis and Transplant Patients Need to Know

Editor’s note: Video and slides for the Town Hall for kidney patients held on May 15 are available on the Betsy Lehman Center website.  The American Kidney Fund, IPRO and the Betsy Lehman Center for Patient Safety will co-host the first in a series of virtual “Town Hall” meetings for kidney patients at noon to […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


COVID-19

Engaging with Coronavirus Precautions

“Honestly, I think we’re all trying to figure out how worried to be.” – Dr. William Dale, quoted by Judith Graham Editor’s note: From washing canned goods to disinfecting our cellphones, leaving packing boxes on the porch, self-quarantining and wondering if all 60 year olds are at “high risk,” the novel coronavirus has us all […]

Tags:

Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter