Category Archives: Engaged Patients

Engaged Patients

Long COVID and ME/CFS – Engaged Patient Communities With Shared Interests

Editor’s note: A new report issued in November by the U.S. Department of Health & Human Services provides an in-depth view of Long COVID based on the experience and knowledge of patients and very much in keeping with this earlier post. The report explores the varied impact of Long COVID on individual lives, including the […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter


Engaged Patients

Long COVID and ME/CFS – Engaged Patient Communities With Shared Interests

As recent episode of the Freakonomics M.D. podcast offers an update about the relationship between Long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), debilitating conditions that share super-engaged patient populations as well as symptoms. According to Bapu Jena, M.D., Ph.D., host of Freakonomics M.D., ME/CFS first gained attention in the mid-1980s. Since then, the condition […]

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Susan Carr Susan Carr is a medical editor and writer specializing in patient safety and engagement. In addition to curating the EngagingPatients blog, she produces publications for the Betsy Lehman Center in Boston and the Society to Improve Diagnosis in Medicine. Susan lives and works in Lunenburg, Massachusetts.

Susan Carr has 185 post(s) at EngagingPatients.org

Check out my: Twitter