The KHN story about sleep apnea diagnosis and treatment, published here on October 19, has prompted vigorous debate. In an extended Letters to the Editor feature, KHN offers a wide range of reader responses, which demonstrate the issues that clinicians and patients must consider when seeking diagnosis of and sustainable relief from this serious medical […]
Penny Shaw is a writer and advocate working on behalf of individuals with disabilities and nursing home residents. A university faculty member and administrator with a Ph.D. in French literature, Shaw developed Guillain-Barre Syndrome, a rare neuromuscular condition, in 2001. In 2002 she moved to a nursing home in Braintree that specializes in neurorehabilitation, where […]
A few weeks ago, I reported on a national survey that measured patient use of internet portals that give patients access to their electronic medical records. I also reflected on my own experience with online access to personal health information. Recently, OpenNotes, a movement that advocates and facilities patient access to their clinicians’ visit notes,* […]
Editor’s Note: The Memorial Rehabilitation Institute received an Honorable Mention from the 2019 Sherman Award for Excellence in Patient Engagement program for its Adaptive Sports and Recreation Program. Based at Memorial Regional Hospital South in Hollywood, Florida, the program provides opportunities for people with cognitive and physical impairment to begin or resume participation in athletic and recreational activities […]
Patient Safety Awareness Week (PSAW) – observed next week, March 10-16 – recognizes ongoing efforts to improve the safety of healthcare. It is a time both to acknowledge contributions from all quarters in the way of projects, research, education and support and to inspire everyone to become more involved. Started by the National Patient Safety […]
For me, a yoga mat and foam roller count as professional tools. They also represent my personal commitment to patient engagement. I’ve worked as a writer and editor for a long time and, most days, spend hours sitting at the computer. That and other things I sometimes overdo—gardening, dancing, life in general—lead to aches and […]